Anjelstore is the result of more than 7+ life changing, character building and meaningful years. A million lifetimes lived and the knowledge and understanding (never really unpacked or allowed to fully connect and form any bond like a formal live-in housekeeper of an old American mansion of no bother except at the highly susceptible and surprising moments after wafare. the constant hypervigilance and sentry guard always checking the parachute knowing with certainty that life can go from relaxing with dinner and a glass of wine and a sudden event that you have been waiting for and almost feel relief every time its there cause its what you have trained for. where you fulfil your ultimate duty as a mother. Saving your son and defying mother nature. And thats one moment you always want to be ready for but its also one moment. After 7 years and more of those 'moments' than I am humanly capable of recalling, a previous life before kids a faint memory of someone else's life. A fleeting memory offloaded in a second to give every ounce of energy to save my child from anything possible in my commitment to Raffael, and all my boys, and their right to comfort, love and the best health i can provide in spite of the uncertainty of life with rare disease.

Simone:

"Life was unremarkable and, we thought, typical, until Raff reached 9 weeks of age and I noticed 2 small 'what i thought were' seizures.

Life that day, was forever changed and 10 months later we were dealing with 800+ seizures per month and finally a diagnosis of CDKL5 deficiency disorder."

This life journey was not what i expected and even today, surreal life stuck in a continual battle with no desire to end this war as there are no winners in any war but especially this one.

After initially trusting the care and knowledge of speclialists, I eventually discovered their limits every time something failed or something was explained away with non answers and pretend knowledge.

I felt no choice but to work out the best management to achieve comfort and peace or little Raff and once achieved, never allow that to happen again.

After reaching a good state of Comfort, optimal gut health, minimal seizures, strong immune system, regular and normal sleep patterns and gastrointestinal health it was time to tackle communication. Eye gaze technology was seen to be the best option and thats where Raff is at today.

I have left no part of my knowledge to waste. my education, training and life experiences, all gave me so much hope and a never ending supply of logical choices that through scientific and logical reasoning we have supported and protected raff towards amazing health. Without this specific formula, he would most likely not be living today..

The products in Anjelstore are hand picked, most used personally or are part of a range that are personally used. Many are hard to come by products or products not as well known in mainstream health and medicine and are options to consider if you are in the same situation.

Simone credits the following qualifications, experiences and skills in her success with Raffael (despite knowing his healthy condition is never guaranteed)

MUSIC: AMEB 7th grade classical piano, 5th grade voice, 6th grade theory of music

Sacred Heart College Graduate

Truck and Medical ambulance driver in the Australian Army

Bachelor of Science- Melbourne Uni 1+ years

Discovered the hash side of the world through 9 months survival on nothing but some bar skills.

Bachelor of Podiatry and Diploma Language Italian.

(Podiatry gave the confidence and skills with minor surgical procedures and scelpel techniques, wound care, pharmacological, dermatology, musculoskeletal, orthotics, joints, neurological, endocrine, and many other skills perfect for the care of a child with complex special needs.

Italian, Spanish and Mandarin including bilingual studies assists with communication, empathy, rapport and development of a problem solving brain.)

Various Occupations - Hospitality, waitressing and gaming attendant, car park attendant, security guard, personal care attendant, etc.

Founder of 5 Podiatry clinics, later settling with one in Geelong

Competed in Womens body-building over 4 years learning advanced weight management and control aiming to outsmart and trick the human body into a low body fat physique while maintaining muscle mass and definition. (keto knowledge)

Found a love for Bollywood dancing and then line dancing including public performances and state competitions

Active in earth spirituality allowing exploration of sacred sexuality, active birthing, inner knowledge, power and strength, and end of life exploration, death walker, death doula training.

More recently extra training in Gut health, CBD and various endocannabinoids, GAPS principles, IMUPRO, IgG, IgA, CDSA, Smart gut and Smart DNA, HTMA testing and training.

Currently in year 1 of a Naturopathy degree.

Courses in NLP, Amino-neuro frequency therapy, Acupuncture, laser therapy, advanced biomechanics and certificate 4 in Disability Support Work

With a lot of support and assistance she is a single parent to 3 children, Anjel (whose Dad and family are a great support and father for her 2 year old)

Her middle child, Raff, living with CDKL5 Deficiency Disorder awaiting a cure.

Javier, a growing 9 year old with unlimited potential.

And, this store is our gift to you. To share knowledge, understanding, and products. We believe in treating our customers and clients just like our family and friends and in all honestly, all who have met through CDKL5 and rare disease feel like family.